Chapter II: Health data platform

A public interest grouping, called the "Health Data Platform", is set up by the State, organisations representing patients and users of the healthcare system, producers of health data and public and private users of health data, including health research organisations.

In particular, it is responsible for:

1° Collecting, organising and making available data from the national health data system referred to in Article L. 1461-1 and promoting innovation in the use of health data;

2° Informing patients and promoting and facilitating their rights, in particular with regard to the right to object under 1° of I of Article L. 1461-3;

3° Providing the single secretariat referred to inArticle 76 of Law No. 78-17 of 6 January 1978 on information technology, files and freedoms;

4° Providing the secretariat for the ethical and scientific committee for research, studies and assessments in the health field;

5° Contributing to the development, by the Commission Nationale de l'Informatique et des Libertés, of benchmarks and reference methodologies within the meaning of b of 2° of I of article 8 of the aforementioned law no. 78-17 of 6 January 1978. It shall facilitate the provision of health data sets with a low risk of impact on privacy, under the conditions laid down in II of article 66 of the same law;

6° Carrying out, on behalf of a third party and at the request of the latter, operations necessary for the processing of data from the national health data system for which this third party has obtained authorisation under the conditions defined in article L. 1461-3 of this Code;

7° Contributing to the dissemination of standardisation norms for the exchange and use of health data, taking into account European and international standards;

8° Supporting, in particular financially, the project sponsors selected in the context of calls for projects launched on its initiative and the data producers associated with the projects selected.

Each year, it publishes a report which is sent to Parliament.